대한질적연구학회지 7권 1호 (p.1-11)

가정에서 가정용 인공호흡기 적용 환자를 돌보는 가족 돌봄 제공자의 돌봄 경험: 질적연구

The Experience of Family Members Caring for Ventilator-Assisted Patients at Home: A Qualitative Study
키워드 :
Home,Mechanical ventilation,Family caregivers,Experience,Qualitative research 가정,인공호흡기,돌봄 제공자,경험,질적연구

목차

서 론
   1. 연구의 필요성
   2. 연구목적
연 구 방 법
   1. 연구설계
   2. 연구참여자 선정
   3. 자료수집 및 분석
   4. 윤리적 고려
   5. 연구자의 준비
   6. 연구의 엄격성 확보
연 구 결 과
   1. 부담스러웠으나 어쩔 수 없이 받아들임
   2. 두려움이 엄습함
   3. 혼자 감당해야 하는 무게
   4. 어렵고 생소하기만 한 모든 것들
   5. 그래도 우리집
   6. 다른 가족들에게 미안함
논 의
결 론 및 제 언
REFERENCES

초록

Purpose: This study was conducted to identify the experiences of families caring for patients with home mechanical ventilation. The question was, “What is the caregiving experience of a family who has a member with home mechanical ventilation?”. Methods: This study was a qualitative study to explore and describe the implications of experiences of families caring through a phenomenological approach. One-on-one in-depth interviews were conducted with family caregivers who worked as full-time for caring for patients with home mechanical ventilation, and the results were analyzed using Colaizzi’s (1978) phenomenological method. Participants’ relationships to patients were 1 spouse, 1 father, and 6 mother. The ages of the participants were between 33 and 59, with an average of 45.1. Results: In this study, family members’ caregiving experience was emerged. Analysis revealed the following themes: Felt burdened but had to accept it; Seized by fear; The weight I must bear alone; Everything is difficult and unfamiliar; Still, my home; and Sorry for the other family members. It was found that caregivers had decided to discharge their loved ones from the hospital out of a sense of duty. Conclusion: The families took care of the patients with responsibility and love. The study results should help with the understanding of a family with a member with home mechanical ventilation and should be used to develop nursing, mediating, and consulting programs for these caregivers